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Hydroxychlorquine/Plaquenil Options
rheumatoidymummy
#81 Posted : Tuesday, March 16, 2010 12:14:42 PM Quote
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Joined: 12/7/2009
Posts: 96
Location: Buckinghamshire
Thanks to a flare as of yesterday I'm now on triple therapy - the MTX, Sulfasalazine and Hydroxychlorine combo.

Really hoping it does the trick!

Can I join the club!
Calmwater22
#82 Posted : Monday, July 05, 2010 11:26:14 PM Quote
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Joined: 12/3/2009
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Hi
Updating how im doing on hydroxy

ps i told to take 2 at once in mornings only,not problems now to start with very tired 1 hour after taking them.bit of dizzziness lasted 2 days gone quick asc ame.

in terms of RA im only on hydroxy steriod has worn off and im not doing to great nor disaster either,seems hydroxy alone sint enough so more setriods consistenly with it may be what i need control ra while reaching my goal of ttc stage this winter.

no problems with eyes at all,but am due eye test anyway to be sure.

now thats RA in terms of Lupus the hydroxy is doing wonders,its calmed down my butterlfy rash to a mild to strong sunburnt look.
mostly mild.
its reduced the dreaded lupus faitgue by Half,and also helping the other various lupus rashes i have.
ive still had some elsions appear but noly when body under stress of abscess for so long,then sinus infectio those lesions now mild an healing again.


I had better results with hydroxy for RA when added to MTX.
ive now been on Hydroxy for 6 months.

Melly
cuddly cats make my world seem so much more fun
jeanb
#83 Posted : Tuesday, July 06, 2010 7:54:44 AM Quote
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Joined: 12/3/2009
Posts: 3,006
Location: Timperley
I have found the hydroxy to be very effective in combo with mtx. Although I am not much different as far as flares and pain is concerned, I am certainly much more awake, less lethargic and my esr and crp are coming down steadily.

Love Jeanxx
BarbieGirl
#84 Posted : Tuesday, July 06, 2010 4:42:20 PM Quote
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Posts: 1,110
Location: London
Hi, I was on triple therapy for 3 months, but had to come of the sulfa due to rashes etc. Now on mtx and hydroxy, but not working, its been a year on mtx now and really had enough of being in constant pain. All the consultant said last week was, even if its mainly Sjogren's you are on the right meds!!! at the time I was in so much pain I could barely walk into his consulting room, had to hold onto the furtniture, and was so unfocussed I should have said, if its the right meds why doesnt it work then!!!??? I know triple therapy is very popular and obviously does work, but not for me it seems!!! Good luck and take care x
BARBARA
Calmwater22
#85 Posted : Tuesday, July 06, 2010 5:48:45 PM Quote
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Posts: 1,740
Hi Barbara aww genlte hugs so sorry see your such pain,i do feel you would do alot better on anti tnf so hang in there maybe push them bit to get yourself assessed for that.
youve done so well trying the single then double then triple dmards,shame about rashes but from what i read some dont get on with sulphazine and some do.

that should be there next step for you hun,id mention it to rheumy nurse,hope your feeling some relief with steriods soon.

so planequil ive found so far no change to RA,yet my RA was desribed as Moderarte stage was Mild age 17.
but postive change for Lupus its the only 1 of 2 offical drugs to be used for Lupus.

lv melly
cuddly cats make my world seem so much more fun
Lorna-A
#86 Posted : Tuesday, July 06, 2010 6:03:43 PM Quote
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Joined: 3/8/2010
Posts: 914

I have been on the triple therapy for almost three years, and apart from a rash in the beginning I had to stop all and re start again, I have been fine since. I do get regular eye tests and my optician checks my eyes thoroughly each year. I also get watery eyes but I am bothered with hay fever, optrex works well for me. Hope everyone on it gets a good response. Love Lorna x Smile
Graham-P
#87 Posted : Tuesday, July 27, 2010 4:29:55 PM Quote
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Joined: 6/4/2010
Posts: 28
Location: Greenwich
Hi Ive been on MTX for 10 weeks now and HYX daily. The only effect they have on me is diarr and sickness!! 25mg not funny every time i go to Rheumotologist they just up the dose. Ive ulner deviation already and would like to hear from anyone else who has been up this road . Im only 41 long term sick and have just been retired on medical grounds.
Damned76
#88 Posted : Tuesday, July 27, 2010 8:15:25 PM Quote
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Joined: 12/3/2009
Posts: 1,081
Hi Graham - I have been put up to 25mg mtx. I must confess though, it makes me feel so rough, I don't always take the full dose. Sometimes I only take 20mg. I haven't confessed this to my rheummy team yet but I'm lucky enough to still be working (mainly desk job) and the 25mg dose just wipes me out. I think you should ring your rheummy nurse. My gp gave me some anti-sickness pills but I don't have the other problem. Take care.

Julie
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